joe

a tough week

All that spaceship gear on her head is just monitoring equipment, ready to observe any seizure activity.  There were seizures earlier in the week, quite terrifying, but in between she was wiggly and cute and alert. Tests were run. Her nurses and doctors are so responsive and caring.  They discontinued one medication and started anti-seizure

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hopeful

This little girl has held her own all week, and today her doctors said they see improvement.  All week we’ve been glad for holding steady.  RSV can be serious trouble, and for her it was. Even if it’s only a little improvement, we are relieved and encouraged. So much love, Sweetheart, Love, Grandma and Grandpa

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baptism

 It was a beautiful night.  It was Heidi’s first day back at work after maternity leave.  At the end of the day I drove the kids back home and stayed in case they needed a hand. They really did not, but it was fun, getting ready, dressing the baby in her Christmas dress for her

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